Rare diseases, what we NOT do?

Where would we be if – instead of political as abstract rights – in recent years, about rare diseases (> 400,000 carrier in only Lazio), we had simply asked (officials, patients, associations and so on):

• number of carrier for codes /groups, such as how many disfunctional at the 45- 66-74%, how many ‘active’ with high frequency (monthly or weekly) treatment and what low (2-3 times a year)
• number of diagnosed by a certified center and how many actually in charge with specific protocol at a general hospital,
• how many profiles have a medical emergency, those who have a first-aid reference
• what are the secondary pathologies by macrosectors than the rare and congenital diseases and what are disabling or disfuntionalizing or degenerative etc.
• how much percent of federal (USA) /national (UE) funds are welded by the ministry and in what time (3-6-9-12-18- more monthes)
• how many carriers ha such checks are made so that they are not exempt prescribed medications related to other diseases … that should pay the Regions
• where do active carriers statistically leave for exemption (social / insurance) code, jurisdiction of residence and healthcare center

As reported by those datas, we found out – investigating the reality instead of ipothize ‘rights’ – no small thing:

• we have to create a health and welfare infrastructure and the mayors have a very important role in our style /quality of life,
• healtcare bureaucrats must take their share of responsibility action ‘from above’ (infrastructure, standards, access, transparency, telematics, etc.)
• without knowing who and what to treat – in the case of chronic sicks it is on arches than a decade – it is not a good idea to do business restructuring and personell competitions
• knowing that the future is of rare diseases, for years e could to provide for more general clinic and minus cardiologists and gastroenterologists as hypertension and reflux are geriatrician and not serve whole departments and chairs for those
• no case is individual and no anomaly has an end in itself: the emergency has not even finished it all until to we plan and implement a new better standard, learning from mistakes
• new discoveries biomedicofarma made clear already 15-20 years ago that there would be only general hospitals and polifunctional nursing / clininics as GPs would need to associate with pediatricians, geriatricians, physiotherapists etc. to withstand the costs of buildings, certification and maintenance, clinic and telematics
• a model were public offers only ‘big hospitals’ and ‘infinitesimally small clinics’ while the rest is outsourced to private or worse (welfare, welfare! ) a non-profit organization of very low level
• not all doctors can be absorbed by the ‘very well payied’ healthcare system, but the quality of a doctor is not certified by his wealth as another worker: the medicians know this, the patients not as them …

And with those datas – which by the way Courts and Bureaus could also claim – we also will have solutions (rights and standards as costs and locations) at hand …

Original posted on demata

Medical malpractice and healtcare waste in Italy

One of the basic requirements of a democracy is that to propose rules and make the decisions are the politicians elected by the people, the technicians are allowed to be minister, stop.
One of the requirements of good administration is to not put in the role of decision-makers who are in clear conflict of interest.

The Italian healthcare is plagued by hundreds of thousands per year medical malpractices reported by the insurance companies and, at least from Rome to South, services are often inefficient, ineffective if not random.

Soo, it will not seem incredible, if the Health Commission of the Italian Senate is composed almost entirely by ‘technical’ and ‘political’: on 28 members 13 are doctors, other 5 are biologists, pharmacologists or nurses and another 6 are employees of local healthcare /welfare authorities . Just two representatives of the parties and two economists.

Zero representatives of associations (patients and / or consumers). Zero representation for the research (science) and the civilized world (ethics). Citizens zero, just zero. Zero, even, the omnipotent pharmaceutical companies.

Meanwhile, the Italian Healthcare spends nearly 10% of our GDP,  rare patients are at least four millions, invalids not minus than 6 millions, one third of over 55 y.o. workers are in ‘not good state of health’ (according officil datas), the monopoly of State on insurance system (INPS) conditions the existence of those who are elderly, those who are sick and those without work. Pratically, every ‘real’ person.
Today, in the middle of the Italian regions residents will pay taxes and increased tickets for services well below those of the other half of the regions, where residents pay less for more.

But the Parliament leaves our Healt(care) in the same hands that have built this crazy and expensive game: Health and Hygiene are off limits for mere mortals, so to limit the cost (and the rights of the sick and disabled) … there is on purpose ‘Pantalon ‘Monti.

It’s Italy and this is just one example about the will of Italian Establishment to repair anything and to re-start the nation.

originale postato su demata

European Healthcare to cut?

‘The crisis has affected everyone and the healthcare is no exception. The future sustainability of national healthcare systems may not be guaranteed if we do not identify new funding arrangements for services’. (Mario Monti, Italian Prime Minister -Eurozone)

Never heard an uncorrect information like this.

To realign the NHS to the actual resources of a country, it would be enough to pay doctors on the basis of what the Nation can afford and not in conseguence of their claims.

And, since almost of them will be ‘civil servants’, as in Europe, the question is self-evident.

What Mario Monti is talking about we really would like to know, because, among other things, he has carefully avoided, in this years of bad times and poverty, to impact on incomes and duties of professors, doctors and journalists?

There is no matter.
A rich country (or continent) pays handsomely, one less rich – not being able to cut back on services, drugs and diagnostics – can only act on salaries, especially if doctors’ incomes normally exceed 80,000 euro gross and if a Director of a university hospital often exceeds 10,000 euro gross per month.

originale postato su demata