Rare diseases, what we NOT do?

Where would we be if – instead of political as abstract rights – in recent years, about rare diseases (> 400,000 carrier in only Lazio), we had simply asked (officials, patients, associations and so on):

• number of carrier for codes /groups, such as how many disfunctional at the 45- 66-74%, how many ‘active’ with high frequency (monthly or weekly) treatment and what low (2-3 times a year)
• number of diagnosed by a certified center and how many actually in charge with specific protocol at a general hospital,
• how many profiles have a medical emergency, those who have a first-aid reference
• what are the secondary pathologies by macrosectors than the rare and congenital diseases and what are disabling or disfuntionalizing or degenerative etc.
• how much percent of federal (USA) /national (UE) funds are welded by the ministry and in what time (3-6-9-12-18- more monthes)
• how many carriers ha such checks are made so that they are not exempt prescribed medications related to other diseases … that should pay the Regions
• where do active carriers statistically leave for exemption (social / insurance) code, jurisdiction of residence and healthcare center

As reported by those datas, we found out – investigating the reality instead of ipothize ‘rights’ – no small thing:

• we have to create a health and welfare infrastructure and the mayors have a very important role in our style /quality of life,
• healtcare bureaucrats must take their share of responsibility action ‘from above’ (infrastructure, standards, access, transparency, telematics, etc.)
• without knowing who and what to treat – in the case of chronic sicks it is on arches than a decade – it is not a good idea to do business restructuring and personell competitions
• knowing that the future is of rare diseases, for years e could to provide for more general clinic and minus cardiologists and gastroenterologists as hypertension and reflux are geriatrician and not serve whole departments and chairs for those
• no case is individual and no anomaly has an end in itself: the emergency has not even finished it all until to we plan and implement a new better standard, learning from mistakes
• new discoveries biomedicofarma made clear already 15-20 years ago that there would be only general hospitals and polifunctional nursing / clininics as GPs would need to associate with pediatricians, geriatricians, physiotherapists etc. to withstand the costs of buildings, certification and maintenance, clinic and telematics
• a model were public offers only ‘big hospitals’ and ‘infinitesimally small clinics’ while the rest is outsourced to private or worse (welfare, welfare! ) a non-profit organization of very low level
• not all doctors can be absorbed by the ‘very well payied’ healthcare system, but the quality of a doctor is not certified by his wealth as another worker: the medicians know this, the patients not as them …

And with those datas – which by the way Courts and Bureaus could also claim – we also will have solutions (rights and standards as costs and locations) at hand …

Original posted on demata

European Healthcare to cut?

‘The crisis has affected everyone and the healthcare is no exception. The future sustainability of national healthcare systems may not be guaranteed if we do not identify new funding arrangements for services’. (Mario Monti, Italian Prime Minister -Eurozone)

Never heard an uncorrect information like this.

To realign the NHS to the actual resources of a country, it would be enough to pay doctors on the basis of what the Nation can afford and not in conseguence of their claims.

And, since almost of them will be ‘civil servants’, as in Europe, the question is self-evident.

What Mario Monti is talking about we really would like to know, because, among other things, he has carefully avoided, in this years of bad times and poverty, to impact on incomes and duties of professors, doctors and journalists?

There is no matter.
A rich country (or continent) pays handsomely, one less rich – not being able to cut back on services, drugs and diagnostics – can only act on salaries, especially if doctors’ incomes normally exceed 80,000 euro gross and if a Director of a university hospital often exceeds 10,000 euro gross per month.

originale postato su demata